This foundation was created in honor of our beloved sons and brothers...Cooper and Cash, to help fund research for treatment for Alpers disease. Alpers is a rare mitochondrial disorder that affects major organs of the brain, eyes and liver.
Both Cooper and Cash suffered from Alpers that not only limited their ability to do things, but shortened their time on earth.
Our younger son Cash was a healthy 1 year old when he started to go into liver failure, which is when we discovered he had this disease. Cash was able to get a liver transplant which allowed his life to be prolonged a few more years before he went home to heaven.
Through the transplant process, Cash had severe brain trauma as a result of Alpers, which made him lose the ability to control his legs and arms. But we believe that he is in heaven now with a fully functioning body, running on those streets of gold, which is the foundation for this organization.
Cooper, with heartfelt loss, was welcomed into heaven by Cash the end of November 2022, days after his 11th birthday. He suffered complications from some viruses that triggered the Mito disease too far from recovery.
These losses have devastated our family, but if we can do anything in this life that we have left, we hope to raise awareness and encourage others that are struggling on this side of heaven. Please join us in our support!!
Our primary beneficiary is the Children's Hospital of Philadelphia's Mitochondrial Medicine Frontier Program, which is the world's foremost program on Mitochondrial Disease Research.
Our other goal is to provide local support to the families that are dealing with serious medical conditions by providing support through meals, gift cards, gas cards and by partnering with other entities such as Children's Hospital of Richmond, Ronald McDonald House Charities and other local entities to help extend outreach to families in need.