Supporting the Fight Against Mitochondrial Disease
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We are looking for all levels of sponsorship and donations.
About Us
Who are we?
This foundation was created in honor of our 2 sons, Cooper and Cash, to help fund research for treatment for Alpers disease. Alpers is a rare mitochondrial disorder that affects major organs of the brain, eyes and liver.
Our younger son Cash was a healthy 1 year old when he started to go into liver failure, which is when we discovered he had this disease. Cash was able to get a liver transplant which allowed his life to be prolonged a few more years before he went home to heaven.
Through the transplant process, Cash had severe brain trauma as a result of Alpers, which made him lose the ability to control his legs and arms. But we believe that he is in heaven now with a fully functioning body, running on those streets of gold, which is the foundation for this organization.
As we work through the diagnosis for Cooper, his doctors have said that there could be clinical trials which could lead to breakthroughs in treatment and eventually curing this disease.
We would love for you to partner with us to help this cause.
What we are doing!
Our primary beneficiary is the Children's Hospital of Philadelphia's Mitochondrial Medicine Frontier Program, which is the world's foremost program on Mitochondrial Disease Research.
But this year we are looking to expand our local support and reach out to other families in need in addition to supporting research at CHOP.